We have a plan!

Sorry I haven't updated sooner, with Kid Jedi getting tutoring, and, well him just being home all day, things for me are taking much longer to get done than normal.

There is an IEP in place, the doctor's recommendations were not included right now, they felt that they would go under the behavior plan that will be included when they get the behavioral therapist in, but, his wonderful teacher asked for a copy of the doctor's recommendations and I know she'll let his 1:1 know about it, I'll let the 1:1 know about it.

So what is included: Kid Jedi will have a 1:1 shadow every day all day at school starting Tuesday; his tutoring lesson on Friday as well as this coming Monday will be in his classroom to start transitioning him; the school OT will consult with him as needed once per week for 30 minutes (increasing to intervention or decreasing as needed); the behavioral therapist will be in to put a behavior plan in place and to work with Kid Jedi's teacher, 1:1 and us (and I will make sure that the doctor's recommendations are included); he will be removed from the classroom daily (like they do other children who need to work on reading, etc.) to work on following directions and focus (compliance is what they call it). Other than the doctor's recommendations not being directly included, I'm ok with the plan but I will keep on them especially since the doctor's recommendations include higher leveled work as needed.

All that being said, Kid Jedi will return to the classroom on Tuesday. His 1:1 will hopefully stop by during his tutoring session on Monday to meet him. He's excited, and scared. I'm nervous. The school is expecting him to get worse before he gets better.

As far as treatment, we haven't decided about medication, but, when we can get an appointment (they have a wait because of them being booked with appointments), we will be consulting with CHOP on that to make that decision (if we go, they do a full workup on him including an EKG before putting him on medication). We will be making an appointment this week to go back to the psychologist who diagnosed Kid Jedi for counseling...they are doing a research trial on a new therapy, but we'd have to either wait for the trial or wait for the meds (if we decide to do that) and we don't think that's in Kid Jedi's best interest.

On Friday during his tutoring, he did run out into the hallway once. This is a great improvement from his first week of school when he was in the classroom for 3 hours and ran out of the room, or tried to, 3 times; the tutoring session was 2 hours and he only left the room, or tried to once.

I picked up a notebook to send Kid Jedi back with which will be for us and his 1:1 to communicate in. I'm really nervous about letting him go, but I do know that this will be good for him.

Another step forward

Well, we got the recommendations from the doc. IEP/504 meeting is at 2:00 today, so I have to copy the school recommendations and get them to the Child Study Team early. I was going to email, but was told by my wonderful HIPAA knowledgeable hubby that email is not confidential and it would set a bad precedence for the communications, so now no email, but I have to take my ADHD combined type to the High School (where our Child Study Team is housed) so I can drop off the info so it can be included in the IEP/504 for our meeting this afternoon. I'm happy with the doctor's recommendations for the classroom so that's a plus. I'm just really hoping we can get him back in the classroom quickly.

Kid Jedi's been doing ok with his home instructor. I can really see his impulsivity when he works with her. He ran away from her twice today when he was supposed to be doing work, but, of course, things were different today than yesterday since DH and I were at the doctor's getting the report so my parents were here.

The doctor also told us of a clinical trial going on at the hospital comparing 2 different therapy protocols. We're trying to decide what to do with that. No meds at this point, we're not sure about that either especially with his asthma and he tested a little high on the anxiety scale and most of the meds increase anxiety. So, we have a lot of research and talking to do. But, hopefully we'll have a school plan in place and get Kid Jedi headed back to school.

Chugging along

So, Tuesdays I usually try to do a tackle, to say that it's been difficult to do the last few weeks is, well, an understatement. We have been dealing with Kid Jedi's school problems in that he's still not back in school, but we are getting a tutor today and she'll be with him 2 hours per day until he's back in the classroom. We should have an IEP meeting on Thursday, we don't have a definite time yet, but I'm hopeful that it will happen.

So, this week's tackle is just to get Kid Jedi learning some things, we did 1 hour of lessons this morning, he finished his lowercase alphabet section of the workbook and is almost finished the math readiness section, which is pretty good for an ADHD kid, we are taking a break right now and this afternoon we'll finish math readiness and do some reading. Library either today or tomorrow.

I also need to make Kid Jedi's allergist appointment for his Asthma, which is needed because he's starting to cough again.

I feel like the Little Engine that Could, and if I don't say "I think I can", I'm afraid I won't. I'll just keep going and we'll make it.

Check out 5M4M for Tackles.

We have a diagnosis!!!

So yesterday at the way too early hour of 8:00 we packed up to head to CHOP. Keep in mind it should only take about 1/2 hour for us to get there, but since we would be hitting rush hour traffic heading into Philadelphia, well, it took us almost an hour.

Well after finally getting in to see our doctor at 9:30, we talked, and talked, and talked about Kid Jedi's behavior, at home, in school, in Karate, from birth to now. Kid Jedi, at least, got to go play with the intern to get evaluated (I want his evaluation part next time). Then we got to answer some questions, go into more detail about things, bring Kid Jedi back in, go wait while the doctor and Kid Jedi played, again I want that part next time, and then some more talking.

Though we normally wouldn't have a diagnosis for about 2 weeks, since Kid Jedi's being kept home from school because the school can't or won't intervene until he's diagnosed, she told us that, yes Kid Jedi has ADHD, that's it, no anxiety, depression or ODD (which the Child Study Team thought he had), oh and of course he's gifted, which we knew, but she told us that he's actually more gifted than the IQ test shows because his ADHD causes false lows on those tests because of distractiblity. We (the hubby and I) go back next week for some ideas for intervention...no medication at this time (we saw a PhD, not an MD so if she wants meds, she has to refer us for a consult).

So, I call Child Study Team when I get home and tell them, yes he has ADHD, to which she asks about ODD, and I tell her, very proudly (and smugly) "Nope!" I didn't get into the giftedness, they should realize that with his test scores, but the psychiatrist will include recommendations for that in her report. Then, she asked for recommendations...hello...she's lucky we got a diagnosis. The way she talked previously, she had worked with other students going to CHOP previously, but apparently not, because otherwise she would have known that it usually takes at least 2 weeks for diagnosis and recommendations, not the same day. Of course, I pleasantly told her that we were lucky that we got a diagnosis, they only did that because of Kid Jedi being kept out of school. To which she responded that she would contact our principal and tell him what's going on.

I called the teacher's extension to let her know what was going on and to let her know that I would be attending Back to School Night tonight. I also thanked her for everything she's done. After all this, the little girl next store, who is in Kid Jedi's class, brought over a folder of some worksheets and papers for us, which I am grateful for. I'm so glad that even through this battle, Kid Jedi has a teacher who really cares about her students (even if he's too much for her classroom right now).

So today I call the Child Study Team, again, to see what we can expect next and the timeline that they have in mind for getting Kid Jedi back in the classroom!